patient & family support
E-cards for Neutropenia Patients
Send an E-card
1. Select the e-card you want to send.
2. Select a patient to send the card to and enter their name in the form below, along with your contact information.
3. Click Send, and we will forward the e-card to the patient of your choosing.
Luke was diagnosed with neutropenia at 16 months, after having a rough encounter with rotavirus, that lead us to a hospital stay. We’ve been in and out of hospitals with many scares, countless blood draws and Iv’s. He currently sees a hemotology as we continue to seek answers for his cause of neutropenia. He’s now 22 months. He’s a strong little warrior with a strong personality, he’s amazes us with his strength. He continues to grow, everyday is a new day for us.
Houston & Elizabeth ( TWINS)
Houston is a twin to Elizabeth. They were born at 32 weeks. At about 2 weeks old the NICU told me they found something wrong with their immune system and their blood counts. Once we was released from the NICU we followed up with a hematologist where had a bone marrow aspiration and biopsy that came back with chronic Neutropenia. Also his twin sister has the same type of Neutropenia. We have fought sickness and infections like crazy! But his sister has been the sicker one out the two but their ANC runs about the same. On a daily basis their ANC is around 800 - 1000!
Nathan was diagnosed with Neutropenia as a baby and has had numerous infections over the years. Due to failing vision related to retinitis pigmentosa, he was diagnosed with Cohen Syndrome aged 25. He has just begun treatment with Neupogen.
My daughter was diagnosed with neutropenia since birth. It was scary at first but now we know the protocol and have to keep close eye on health and hygiene because she has started school.
Was diagnosed at the age of 16 after years of trying to find out why she was getting sick.Did not know nothing about this disorder and not many doctors here did. Years of ups and downs of illness. And going through 2 pregnancies and many prayers of healthy children. Having some rough times lately with side affects. And other illnesses. She is so up beat and cares about others with this disorder and others going through hard times.