2023 NEUTROPENIA FAMILY RETREAT

2023 Neutropenia Family Retreat

Join us at the Graduate Hotel in Cincinnati, Ohio July 14th – July 16th.

Platinum sponsor

Supporting Sponsors

What is the Retreat?

We are excited to be able to bring our Neutropenia community together again in person this summer! We may be small as a rare disease, but together we are one big family!

We are looking forward to providing an extraordinary experience. Our goal is to help equip you with the skills, knowledge and support you need to manage life with Neutropenia. These in-person retreats have proven to be invaluable, leaving a lasting impression on the lives of individuals with chronic Neutropenia and their families. We look forward to seeing you!

What To Expect

The opportunity to connect with other individuals/families who are dealing with chronic Neutropenia.
Presentations from Neutropenia experts and professionals with topics covering chronic Neutropenia in general, management, up to date research findings and ongoing clinical studies.
Breakout sessions to address the different types of chronic Neutropenia and specific topics; testimony to personal stories of those living with Neutropenia; and more!
1:1 consultation with Neutropenia specialists.
Kids Camp for all kids in attendance ages 4-16 brought to you by The Ella Jewell Foundation and coordinated by professional event planner Kristin McGuinness, her Sparklicious staff, and volunteers. Kids Camp will be in session Friday afternoon and all day Saturday during the presentations and break out sessions for adults (kids will join parents for all meals). We are excited for the kids to get to know each other and enjoy all the fun activities that Kristin and her staff have planned for the weekend!
Shot parties! Demonstrate your shot technique and learn what works for others.
A fun, relaxed weekend creating positive memories and developing a support network to help you along this journey.

Details

Check in begins Friday, July 14^th early afternoon, the closing session will end approximately 12:00 pm Sunday, July 16^th – final agenda will be set late spring. YOU MUST PRE-REGISTER FOR THE RETREAT BY JUNE 15.
The retreat weekend will be held at the Graduate Hotel, Cincinnati, Ohio.
Hotel booking and retreat registration are 2 separate fees.
- You can book a hotel reservation at The Graduate using the link below. The group discount code will book a room with (2) Queen beds with a maximum capacity of (4) for $159/night plus hotel fees and taxes. Check in is 4pm and check out is 11:00am. PLEASE NOTE THAT THE GROUP DISCOUNT CODE FOR HOTEL RESERVATIONS WILL EXPIRE JUNE 19TH
  - Central Reservations Phone Number: 844-888-4723
  - Group rate code 7985377
  - National Neutropenia Network Family Retreat – Graduate Cincinnati 7.13-17.2023
Registration fees: Ages 12 and up $155 each (early bird pricing! REGISTRATION RATES INCREASE to $180 AFTER May 1). Children 6-11 are $95 each. Children 5 and under are free!
- Registration includes all presentations, handouts, children and teen programs for kids ages 4-16 years, Friday dinner, Saturday breakfast/ lunch/dinner and Sunday breakfast and tee shirts. Thanks to our generous sponsors we are able to offer registration at an already reduced rate!
- PLEASE NOTE THAT CHILDREN UNDER THE AGE OF 4 WILL NOT HAVE AN ORGANIZED PROGRAM TO ATTEND OR CHILDCARE AVAILABLE ~ IN THE PAST, FAMILIES HAVE CHOSEN TO BRING ADDITIONAL FAMILY MEMBERS WITH THEM TO ASSIST WITH CHILDCARE WHILE PARENTS ATTEND CONFERENCE AND BREAKOUT SESSIONS.

Financial Assistance. We believe regardless of income, living with a medical condition comes with a financial burden no one should bear alone. Thanks to X4 Pharmaceuticals, we have three financial assistance options!
- Registration Fee Discount – you can receive a $50 discount per registrant, no questions asked. Click here for more details.
- Hardship Grants – for those who need more assistance than the discounted rate, hardship grants are available for those who qualify. If you apply for a hardship grant, you will need to wait to register. Click here to apply for a hardship grant.
- Personal fundraisers for Retreat Registration Fees and Hotel Costs. The NNN has a fundraising platform for attendees to raise money to cover their expenses. This platform allows your friends and family to support you through a tax-deductible donation and alleviates our community members from starting GoFundMe campaigns or other fundraisers. If interested, email [email protected]. Please note:
  - Personal fundraisers must be completed by June 1.
  - If you raise more than the total of your hotel and registration fees, additional funds will be a donation to the NNN. The NNN cannot give you cash for funds raised that exceed these expenses.
  - Personal fundraisers do not preclude you from applying for a Hardship Grant, nor do you need to apply for a Hardship Grant to take advantage of the personal fundraiser option.