Find Hope in Community
We’re here to listen & help
Reduced or absent neutrophils characterize the rare blood condition neutropenia.
About Us
We’ve been there and we know how you
might be feeling…
The National Neutropenia Network has a group of trained volunteers who are prepared to speak with those seeking support. We will connect you with a volunteer that best matches your circumstances and the hurdles you may be facing.
- Our Mission
The mission of the National Neutropenia Network is to promote awareness, education, and research, and to provide a support system for patients with severe chronic neutropenia (SCN) and their families through a national resource network. - Leadership
The leadership of the National Neutropenia Network includes two part-time staff and our board of directors.
What is Neutropenia?
Statistics
About 1 in every 200,000 people has severe congenital neutropenia
Symptoms
Neutrophil count below 1,500 per ml, frequent infections, and/or fevers.
Treatment
Focus on preventing and managing infections through antibiotics, anti-inflammatory drugs, G-CSF, bone marrow transplant
Our Sponsors and Research Partners
Testimonial
Patient Stories & Experiences
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”
- Jacqueline
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”