Neutropenia Family Retreat

Since 1994, our Neutropenia community has been gathering during the summers for our Family Retreat. We may be small as a rare disease, but together we are one big family! 

Our goal with each retreat is to help equip attendees with the skills, knowledge and support you need to manage life with Chronic Neutropenia.  We are often asked if this weekend is just for families and we are happy to say this weekend is not only for families but also for adults with chronic neutropenia. There will be presentations and breakout sessions designed for each group attending. These in-person retreats have proven to be invaluable, leaving a lasting impression on the lives of individuals with chronic neutropenia and their families. 

What to Expect

The NNN Family Retreat is designed to be more than a medical conference. It offers a balance of education from leading experts and meaningful connection with others who understand the experience of living with chronic neutropenia. Saturday is the primary day for educational sessions with our expert speakers, while Friday focuses more on community connection, with a few educational presentations woven in. Throughout the weekend, there are opportunities to learn, share experiences, ask questions, and build relationships. Past attendees have consistently valued these connections just as highly as the medical education. We encourage you to consider both aspects of the retreat when planning your attendance!

We will have a kids camp again this year for kids ages 4-16 thanks to the Ella Jewell Foundation.

NEW THIS YEAR! Connect with a Buddy – Attending the retreat for the first time, or simply hoping to connect with someone who understands your journey? Our Retreat Buddy Program offers an opportunity to connect with another attendee with a similar journey before the retreat, so you’ll already know a friendly face when you arrive. Request during registration!

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REGISTRATION AND ACCOMMODATIONS

Please review the information below to register for the retreat, explore financial assistance options, and plan your accommodations.

1. Retreat Registration

Registration is required for everyone attending the retreat. Thanks to X4 Pharmaceuticals, we are able to offer fees at a substantial discount. Your retreat registration covers participation in our presentations, handouts and t-shirt, Friday dinner reception, Saturday breakfast/lunch/dinner reception, and Sunday breakfast. For kids ages 4-16, registration includes kids/teen camp, thanks to the Ella Jewell Foundation! Note we do not have childcare for kids 3 and under. In the past, people have brought along another caregiver to assist with childcare while the parent(s) attended the sessions.

Registration costs (Early Bird Pricing through April 30, 2027):

• *Adult Registration: $155
• *Child Registration Ages 13-17: $155
• *Child Registration Ages 6-12: $90
• *Child Registration Ages 0-5: FREE

*If you would like financial assistance, please see the next section before starting to register for the retreat.

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2. Financial Assistance

We believe regardless of income, living with a medical condition comes with a financial burden no one should bear alone. Thanks to X4 Pharmaceuticals, we have been able to discount the registration fee for everyone plus provide additional financial assistance options.

If you would like to request financial assistance, please complete the financial assistance application first and wait to receive a response before registering for the retreat or making hotel reservations.

• *Registration Fee Discount – Receive an additional $50 discount per registration.
• *Retreat Assistance Fund – For those who need a little more assistance, we have retreat assistance available for those who qualify.

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3. Hotel & Accommodations

We encourage you to stay at Graduate by Hilton Cincinnati, where the NNN Family Retreat will take place. Staying at the hotel makes it easy to join the retreat activities throughout the day and enjoy additional opportunities to connect with other families in the evenings and mornings.

Group Rate: $165 per night plus taxes and fees (total $196.84/night) / Driving? Daily parking fee is $15/night.

The discounted group rate includes a room with two Queen beds, with a maximum occupancy of four guests or a room with one King bed, with a maximum occupancy of two guests. The rate is available for Thursday through Saturday nights, July 15–17, 2027.

Check in is 4pm and check out is 11:00 am.

Ready to book?

Use the hotel reservation link below to receive the NNN group rate. A major credit card is required to secure your reservation.

Need to arrive earlier or stay later?

You can also receive the discounted rate of $165 per night for Thursday, July 15 and/or Sunday, July 18. To reserve either of these additional nights do reserve online or you will not get the discounted rate for all days, please contact:

Tianna Connelly | Graduate by Hilton Cincinnati
Phone: 513-487-3891

If Tianna is unavailable, please leave a message explaining that you would like to book an additional night on Wednesday and/or Sunday for the NNN Family Retreat. She will return your call to complete the reservation.

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We can’t wait to bring our community together for another meaningful weekend to learn and connect so that you can return home and thrive.

Questions? Contact [email protected]g