get involved
October 2019 marks the 25th year
of the National Neutropenia Network!
Congratulations to all of you for your support in keeping it strong!
Participate in our “Steps for Neutropenia”
Join the National Neutropenia Network for our 1st Virtual Event!
‘Steps for Neutropenia’ is a virtual race to connect your family and friends across the world to help raise awareness about neutropenia and raise funds to keep it strong. Your contributions will enable us to provide education, support, and connections to experts for children and adults with chronic neutropenia which is often a trying journey marked by baffling infections, emergency room visits, and the desperate search for a physician who understands. The National Neutropenia Network depends on support from the friends and families of those whose lives have been forever changed and challenged by this rare disease.
This virtual event takes place anywhere-wherever you are and takes place from October 1, 2019 through October 31, 2019. Set a target to reach 10,000 steps each day! You can run, walk, swim, bike, dance, knit, read-create your own path to supports those with neutropenia and the network stay strong!
Our goal is to have 150 participate, connect with 3,000 friends and raise $20,000.
Choose your favorite activity and connect with your family and friends! You can create a team as well and ask them to join and support this great cause. Feel free to choose any activity of your choice-walking, swimming, knitting, reading, etc. We want everyone to be able to join in the fun!
Become part of our Network
Join us in in the battle against Neutropenia. Together, we can support children, adults, and families in their journey to find answers and find mutual support. Learn how can get involved.
Advocate
Help the National Neutropenia Network to build a network of advocates who can take action on issues that affect individuals with neutropenia and their families. Help us to increase awareness of neutropenia among healthcare professionals. To become an advocate, contact Kate.
Fundraise
Supporters of the National Neutropenia Network can do a number of events to support our mission:
- Host a fundraiser in your area at a local establishment such as Dave & Busters, Cherry Berry, Buffalo Wild Wings, etc. Connect with the manager at your local restaurant to determine what works best for you. To fundraise for the National Neutropenia Network, contact Kate kate@neutropenianet.org.
- In lieu of gifts, donations can be given to your favorite charity.
- Active Challenge: create your own personal challenge such as swimming, running, or walking. Set a goal and ask your family & friends to donate to your cause.
- RoundUp App: “round up” the change from your debit or credit card purchases and donate it to us monthly. See Program Details, How it works, and Security Information. Thanks for your support.
Attend an Event
Connect with others at one of our upcoming events. Our Supporters host a variety of events throughout the year, including the events listed below:
- Power Play 4 Neutropenia to benefit the Ella Jewell Foundation: held in the fall each year
- 2020 Neutropenia Family Conference: July 24-26, 2020 in Ohio. Details coming soon.
Purchase items & spread awareness
Support our Partners
The National Neutropenia Network works with many organizations in order to serve the needs of individuals with neutropenia and the organizations that support them. Learn about the ways you can help support these programs:
Volunteer
Give of your time and make a difference for those in need. The National Neutropenia Network relies on volunteers to carry out our mission. Please contact Kate for more information.
Event Planner(s): Create a local event(s) in your area to raise awareness and financial support for the National Neutropenia Network. Be creative, implement, and plan your own unique event locally or on-line. Event options can include, but are not limited to: walks, restaurant fundraisers, sports themes, etc. Events are to raise awareness and funds for the National Neutropenia Network. This volunteer opportunity is open to individuals, families, students, and groups.
Social Media: We are looking for volunteers who know their way around social media and can help us spread awareness about neutropenia, the National Neutropenia Network, and how to help the NNN community. This is a great volunteer opportunity for students, professionals, or those who love social media!
Conference: Help out at our Family Conference? There are a variety of opportunities to choose from: registration, greeting, room host, Kids Kamp. Details on next conference coming soon. Please contact Kate if you are interested in volunteering with us.
We appreciate you willing to share your time and talents with us. Thank you.