Whether you attended in person or are exploring from home, this page is your one-stop destination for all the valuable content shared during our retreat. Here you’ll find presentation slides, handouts, session recordings, and videos from experts, families, and community members who make the NNN family so special.
We hope these resources continue to inform, support, and inspire you long after the retreat ends. Keep checking back as we continue to add more content!
- Dental Care presented by Dr. Sarat Thikkurissy, DDS, MS, NA
- General Overview of Neutropenia presented by Dr. Peter Newburger
- Coping Skills and Stress Management presented by Dr. Monica Kruse Burns
- Severe Chronic Neutropenia International Registry presented by Dr. David Dale and Dr. Akiko Shimamura
- Karyn Brundige, MSN, CPNP, FAPHON discuss topics about biosimilars, joining the SCNIR registry, and shared some of her vast knowledge as she is a nurse practitioner and is part of the SCNIR team.
- SCNIR: Genetics presented by Dr. Akiko Shimamura
- Physician Panel – Q & A with the Physicians
- Navigating Schools – presented by Carissa Lloyd and Ryan Hanna, School Liaisons
- Voices of Experience – hear from members of the NNN Community regarding their journey
Updated August 6, 2025
We have many more photos of the incredible weekend that we will make available soon!