Patient & Family Support
Get Support from Peers
We’ve been there… we know how you might be feeling…we’re here to listen and help!
Personal Stories
The stories and memorials of those who are and have dealt with severe chronic neutropenia drive the mission of our organization.
Facebook Groups
Facebook Groups can be a great resource for connecting with other individuals and families.
Additional Specialists
Background and information on a number of specialists working to understand and alleviate neutropenia.
Testimonial
Patient Stories & Experiences
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”
- Jacqueline
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”