Neutropenia Family Retreat
What is the Retreat/Conference?
Since 1994, our Neutropenia community has been gathering during the summers for our Family Retreat. We may be small as a rare disease, but together we are one big family!
Our goal with each retreat is to help equip attendees with the skills, knowledge and support you need to manage life with Neutropenia. We are often asked if this weekend is just for families and we are happy to say this weekend is not only for families but also for adults with chronic neutropenia. There will be presentations and breakout sessions designed for each group attending. These in-person retreats have proven to be invaluable, leaving a lasting impression on the lives of individuals with chronic Neutropenia and their families.
What to Expect
- The opportunity to connect with other individuals/families who are dealing with chronic Neutropenia.
- Presentations from Neutropenia experts and professionals with topics covering chronic Neutropenia in general, management, up to date research findings and ongoing clinical studies.
- Breakout sessions to address the different types of chronic Neutropenia and specific topics.
- Testimony to personal stories of those living with Neutropenia.
- Kids Camp for all kids in attendance ages 4-16.
- A fun, relaxed weekend creating positive memories and developing a support network to help you along your journey.
- Financial Assistance available.
MORE INFORMATION COMING SOON!
Want to Get Involved?
Planning is already underway for the 2027 NNN Family Retreat, and we’d love to welcome a few more voices to our planning committee!
Whether you’ve attended a retreat before or hope to attend one in the future, your ideas can help us create an even better experience for our community. We’re looking for input on educational topics, activities, and ways to make the retreat as meaningful and supportive as possible for adults living with neutropenia, children, families, and loved ones.
The committee meets on the first Wednesday of each month at 7:00 p.m. Eastern, but don’t let scheduling keep you from reaching out. Even if you can’t attend every meeting, or even the retreat itself, we’d still love your input.
If you’re interested in sharing your ideas and helping shape the future of the Family Retreat, we’d love to hear from you!
Please contact [email protected].
Questions? Email [email protected]
Testimonial
Patient Stories & Experiences
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”
- Jacqueline
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”