The Severe Chronic Neutropenia International Registry (SCNIR or Registry) is a global organization dedicated to finding the causes, consequences and best treatments for severe chronic neutropenia (SCN). The SCNIR opened in 1994 after researchers discovered that the hematopoietic growth factor called granulocyte colony stimulating factor (G-CSF) is an effective treatment for SCN. Check out their website for more information as well as the resources below.
In addition, don’t miss SCNIR Family Day, Saturday Nov. 2, 1-4 pm ET. will be an opportunity for patients, families, and medical providers to hear information about neutropenia and updates from the Severe Chronic Neutropenia International Registry. This virtual conference will discuss topics important to both pediatric and adult patients with neutropenia and their families. SCNIR investigators will share knowledge gleaned from the SCNIR and discuss ongoing research to improve the health of people with neutropenia conditions. Attendees do not need to be a part of the SCNIR to join.
There will be Q&As for patients and families and presentations on topics such as genetic and autoimmune neutropenia, bone marrow transplant, living with chronic neutropenia, and others.
Click this link to register: SCNIR 2024 Family Day.
