Neutropenia Family Retreat

What is the Retreat/Conference?

Since 1994, our Neutropenia community has been gathering during the summers for our Family Retreat. We may be small as a rare disease, but together we are one big family! 

Our goal with each retreat is to help equip attendees with the skills, knowledge and support you need to manage life with Neutropenia.  We are often asked if this weekend is just for families and we are happy to say this weekend is not only for families but also for adults with chronic neutropenia. There will be presentations and breakout sessions designed for each group attending. These in-person retreats have proven to be invaluable, leaving a lasting impression on the lives of individuals with chronic Neutropenia and their families. 

What to Expect

• The opportunity to connect with other individuals/families who are dealing with chronic Neutropenia.
• Presentations from Neutropenia experts and professionals with topics covering chronic Neutropenia in general, management, up to date research findings and ongoing clinical studies.
• Breakout sessions to address the different types of chronic Neutropenia and specific topics; testimony to personal stories of those living with Neutropenia; and more!
• Kids Camp for all kids in attendance ages 4-16 brought to you by The Ella Jewell Foundation and coordinated by professional event planner Kristin McGuinness, her Sparklicious staff, and volunteers.  Kids Camp will be in session Friday afternoon and all day Saturday during the presentations and break out sessions for adults (kids will join parents for all meals).  We are excited for the kids to get to know each other and enjoy all the fun activities that Kristin and her staff have planned for the weekend!
• Shot parties! Demonstrate your shot technique and learn what works for others.
• A fun, relaxed weekend creating positive memories and developing a support network to help you along your journey.

More details on topics covered at this year’s retreat coming soon!

Event Information

• Retreat weekend will be held at the Graduate Hotel, Cincinnati, Ohio beginning on Friday, July 11th at 1:00 with orientation and ending Sunday, July 13th at noon, after the final session.
• Check in for the retreat begins Friday, July 11^th at 11 am.
• Hotel reservations are booked separate from the Retreat registration and must also be booked by June 9th for group discount pricing. Hotel prices did not increase since our last retreat in 2023!

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Registration – Now Open!

We are thrilled to announce that we are able to keep registration fees the same price as in 2023 which includes a generous discount for all registrations. 

Register early for early bird pricing good through April 30, 2025. Prices will increase May 1, 2025 from $155 to $180/adult. FINAL REGISTRATION ENDS JUNE 9TH.

PLEASE NOTE THAT CHILDREN UNDER THE AGE OF 4 will not have an organized program to attend or childcare available – in the past, families have chosen to bring additional family members with them to assist with childcare while parents attend conference and breakout sessions. 

REGISTRATION ENDS JUNE 9TH.

Adult Registration

Early Bird Pricing ends April 30

Adult Registration Early Bird Price Ends 4/30 $155 Includes all presentations, handouts, t-shirt, Friday dinner reception, Saturday breakfast/lunch/dinner reception, Sunday breakfast, entertainment.	Child Registration Ages 12-17 Early Bird Price Ends 4/30 $155 Includes all presentations, handouts, t-shirt, child and teen programs, Friday dinner reception, Saturday breakfast/lunch/dinner reception, and Sunday breakfast.
Child Registration Ages 6-11 Early Bird Price Ends 4/30 $95 Includes all presentations, handouts, t-shirt, children programs, Friday dinner reception, Saturday breakfast/lunch/dinner reception, and Sunday breakfast.	Child Registration Ages 0-5 Please register all kids ages 0-5 Free NO KIDS CAMP FOR AGES 0-3. Registration includes Friday dinner, Saturday breakfast/lunch/dinner, and Sunday breakfast. Kids 4 & 5, includes kids program & t-shirt.

If you would like to request financial assistance, we have a couple options available. Please see the next section and do not register until after applying for assistance and receiving a response.

If you are not requesting financial assistance, register today! EARLY BIRD PRICING ENDS APRIL 30.

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Financial Assistance

We believe regardless of income, living with a medical condition comes with a financial burden no one should bear alone. Thanks to X4 Pharmaceuticals, we have financial assistance options for all!

• Registration Fee Discount – you can receive a $50 discount per registrant.
• Hardship Grants – for those who need more assistance than the discounted rate, hardship grants are available for those who qualify. 

Email [email protected] for more information.

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Hotel Reservations

The group discount code will book a room with (2) Queen beds with a maximum capacity of (4).

Reservations must be accompanied by a major credit card.

Check in is 4pm and check out is 11:00am.

PLEASE NOTE THAT THE GROUP DISCOUNT CODE FOR HOTEL RESERVATIONS WILL EXPIRE JUNE 9TH.

Make your hotel reservations by calling the number below or using the direct link:
Central Reservations Phone Number:  1-800-991-5028

National Neutropenia Network Family Retreat – Graduate Cincinnati

Questions? Email [email protected]