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The National Neutropenia Network (NNN) depends on support from the friends and families of those whose lives have been forever changed and challenged by this rare disease.
Junior Ambassador
The Junior Ambassador program gives children the opportunity to turn their neutropenia journey into something positive.
Senior Ambassador
The Senior Ambassador Program members act as a liaison between the NNN and the community at large by serving as advocates to raise awareness of neutropenia, provide general education of the disease process...
Peer Support Volunteer
The Peer Support Volunteer (PSV) Program is geared toward positively influencing the emotional well-being of patients and families facing the challenges of neutropenia...
Testimonial
Patient Stories & Experiences
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”
- Jacqueline
“My first NNN conference was 2018. I spent years before that almost in denial of my condition, feeling very lonely. I always thought the NNN conference was just for families with children not adults with neutropenia. As I grew older I felt I needed to have more of a connection to neutropenia and wanted to meet others with it and doctors that actually KNEW about what I had! That’s exactly what I got!
- Vanessa
“Having a rare disease has been a challenging and rewarding experience that has giving me the opportunity to meet some amazing people. It has taught me to never stop learning! I have an amazing team of doctors that have worked hard to help me life the safest best life possible.”