Save the Date
We are excited to announce the dates for the 2025 Family Conference. We hope you will join us July 11-13, 2025 at The Graduate Hotel in Cincinnati, Ohio. This is a fantastic opportunity to connect with other families, gain insights into the latest research and treatment options, and hear from leading experts in the field. Don’t miss out!
Not sure about joining us for the conference? See below for photos from the 2023 Neutropenia Family Retreat as well as more information about what to expect from the retreat.
Photos
Professional Photos https://photos.app.goo.gl/vWCAa4jYvGszmLpt9
Cellphone photos shared https://photos.app.goo.gl/vHqPCNU5CNjTAeeo8
Since 1994, our Neutropenia community has been gathering during the summers for our Family Retreat. We may be small as a rare disease, but together we are one big family!
Our goal with each retreat is to help equip attendees with the skills, knowledge and support you need to manage life with Neutropenia. These in-person retreats have proven to be invaluable, leaving a lasting impression on the lives of individuals with chronic Neutropenia and their families. We look forward to meeting again in July, 2025!
What to Expect:
- The opportunity to connect with other individuals/families who are dealing with chronic Neutropenia.
- Presentations from Neutropenia experts and professionals with topics covering chronic Neutropenia in general, management, up to date research findings and ongoing clinical studies.
- Breakout sessions to address the different types of chronic Neutropenia and specific topics; testimony to personal stories of those living with Neutropenia; and more!
- Kids Camp for all kids in attendance ages 4-16 brought to you by The Ella Jewell Foundation and coordinated by professional event planner Kristin McGuinness, her Sparklicious staff, and volunteers. Kids Camp will be in session Friday afternoon and all day Saturday during the presentations and break out sessions for adults (kids will join parents for all meals). We are excited for the kids to get to know each other and enjoy all the fun activities that Kristin and her staff have planned for the weekend!
- Shot parties! Demonstrate your shot technique and learn what works for others.
- A fun, relaxed weekend creating positive memories and developing a support network to help you along your journey.
- More details on topics covered at this year’s retreat coming soon!
Details
- Check in begins Friday, July 11th at 11 am, the closing session will end approximately 12:00 pm Sunday, July 12th – final agenda will be set late spring. YOU MUST PRE-REGISTER FOR THE RETREAT BY JUNE 15.
- The retreat weekend will be held at the Graduate Hotel, Cincinnati, Ohio.
- Registration fees coming soon!
- Hotel booking and the NNN retreat are 2 separate registrations/fees.
- Information regarding hotel booking and group discount rates coming soon.
- Registration fees: Ages 12 and up $155 each (early bird pricing! REGISTRATION RATES INCREASE to $180 AFTER May 1). Children 6-11 are $95 each. Children 5 and under are free!
- Financial Assistance for those who need it. We believe regardless of income, living with a medical condition comes with a financial burden no one should bear alone. We are committed to continuing financial assistance for future retreats.
Questions? Email [email protected]
